What Children on the Autism Spectrum Really Need
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Description
Book Introduction
12 people on the autism spectrum share vivid advice.
The Future of Children on the Autism Spectrum: Learning from the Lives of Adults on the Autism Spectrum
This story, told from the perspective of a person with autism, goes beyond the common perspective of non-autistic people as a "problem" or "deficit," and delves deeper into the nature of the autism spectrum and the diversity it encompasses.
Author Jenna Gensik interviewed 12 people on the autism spectrum who were verbally expressive, interested in self-advocacy, and had diverse educational and professional backgrounds over a three-year period, through phone and email.
The honest voices gathered in this way are contained in this book.
Twelve people on the autism spectrum, including Lydia Brown, Alyssa Hillary, and Ben Katze, share their experiences and insights from their childhood to adulthood.
They emphasize that what children on the autism spectrum truly need above all else is not attempts to 'fix' them, but 'respect', 'understanding', and 'the power of self-advocacy'.
The book begins with the preface, “To understand more and help more,” and through each interview, it addresses various challenges that children on the autism spectrum face as they grow up, such as autistic identity, difficulties in school life, friendships and relationships, finding a job and working life, development and independence.
For example, Lydia Brown says we should stop trying to "fix" autistic people and instead teach them self-advocacy.
Amy Gravino talks about growing up and friendships during adolescence, and Shawna Hinkle highlights the role of parents in ensuring educational rights.
It's also full of insights into how small changes parents and teachers can make can make a huge difference in a child's life.
Each interview is followed by a reflection section with “Think About It” questions to help parents and teachers reflect on how they view their children and what they can do together.
At the end of the book, the book provides '33 Tips for Living Strongly as a Person with Autism' and 'Self-Advocacy Skills' to encourage children with autism spectrum disorders to live independent and dignified lives.
This book aims to dispel misconceptions and prejudices surrounding the autism spectrum and to respect the potential and dignity of people with autism.
By centering the voices of the individuals involved, this book resonates deeply with children and youth on the autism spectrum, their families, and all of us who live with them.
It also conveys strong courage and warm understanding to parents, teachers, and friends who walk with their children.
In the process of encountering diverse voices and perspectives, we will all learn to embrace our differences and accept each other as we are.
The Future of Children on the Autism Spectrum: Learning from the Lives of Adults on the Autism Spectrum
This story, told from the perspective of a person with autism, goes beyond the common perspective of non-autistic people as a "problem" or "deficit," and delves deeper into the nature of the autism spectrum and the diversity it encompasses.
Author Jenna Gensik interviewed 12 people on the autism spectrum who were verbally expressive, interested in self-advocacy, and had diverse educational and professional backgrounds over a three-year period, through phone and email.
The honest voices gathered in this way are contained in this book.
Twelve people on the autism spectrum, including Lydia Brown, Alyssa Hillary, and Ben Katze, share their experiences and insights from their childhood to adulthood.
They emphasize that what children on the autism spectrum truly need above all else is not attempts to 'fix' them, but 'respect', 'understanding', and 'the power of self-advocacy'.
The book begins with the preface, “To understand more and help more,” and through each interview, it addresses various challenges that children on the autism spectrum face as they grow up, such as autistic identity, difficulties in school life, friendships and relationships, finding a job and working life, development and independence.
For example, Lydia Brown says we should stop trying to "fix" autistic people and instead teach them self-advocacy.
Amy Gravino talks about growing up and friendships during adolescence, and Shawna Hinkle highlights the role of parents in ensuring educational rights.
It's also full of insights into how small changes parents and teachers can make can make a huge difference in a child's life.
Each interview is followed by a reflection section with “Think About It” questions to help parents and teachers reflect on how they view their children and what they can do together.
At the end of the book, the book provides '33 Tips for Living Strongly as a Person with Autism' and 'Self-Advocacy Skills' to encourage children with autism spectrum disorders to live independent and dignified lives.
This book aims to dispel misconceptions and prejudices surrounding the autism spectrum and to respect the potential and dignity of people with autism.
By centering the voices of the individuals involved, this book resonates deeply with children and youth on the autism spectrum, their families, and all of us who live with them.
It also conveys strong courage and warm understanding to parents, teachers, and friends who walk with their children.
In the process of encountering diverse voices and perspectives, we will all learn to embrace our differences and accept each other as we are.
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Preview
index
Preface To help you understand more and help you more… … … … … … … … … … … … … … … … … … … … … … … … … … … … 4
Going into the interview, “I want to tell our story for children on the autism spectrum and their parents” … … … … 16
01 Interview with Lydia Brown: Autistic Identity and Self-Advocacy
Do you want to 'fix' us? … … … … … … … … … … … … … … … … … … … … … … … … … … … … … … … … … … … … … … … … … … … … … 18
Autism is fundamental to my identity. · Asperger's is the next step in evolution, and severe autism is a malfunction in evolution? · Stop trying to "fix" us. · Teach self-advocacy. · Think about it.
02 Alyssa Hillary Interview: Social Integration and Hiding Autism
It is not hidden, and the more you hide it, the further it gets… … … … … … … … … … … … … … … … … … … … … … … … … … … … … … … … … 28
Their own jokes · Everyone does the same thing · If it were integrated into hiding autism · Think about it
03 Ben Katze Interview: Bullying and Academic Problems in School Life
How to live and study safely at school … … … … … … … … … … … … … … … … … … … … … … … … … … … … … … … … … … … … 38
School life with masks · If there is a classroom where someone is on my side · Please actively communicate with the school · The difference of having a teacher who gives me a sense of closeness · A home environment that supports my child's school life · Think about it
04 Team Page Interview: Social Skills Manual and Executive Function Problem Solving
If you lower your anxiety, it's okay to be a lonely weirdo... … … … … … … … … … … … … … … … … … … … … … … … … … … … … … … … … … … … … 50
Surviving Kickball with Opera · Everyone is an actor on the stage of society; we need a manual like a script · Executive function that 'can't be done' · Meditation that lowers anxiety · Thinking
05 Jodi Van de Wetterling Interview: Motor Planning, Sensory Processing, and Cognitive Behavioral Therapy
How to Find Treatment That Helps Your Child … ...
The trampoline that completely broke me down · Still, exercise from a young age · Sensory processing issues that are more fundamental than social skills · For cognitive behavioral therapy to be effective · Think about it
06 Interview with Cathy Gray: The Ethical Challenges of Autistic Behavior "Correction" and Treatment
Please increase what you can do, not what you can't do... ... ... ... ... ... ... ... ... ... ... ... ... ... ... ... ... ... ... ... 74
What I Learned from the Disneyland Monorail · Passion, Special Interests, and Obsession vs. Linking · Why Do We Insist on Eye Contact? · How to Learn to Act Naturally, Not Robotically · What We Want from Our Parents, Even When We Can't Say It, and Even When We Can · Considerations
07 Interview with Lydia Wayman: Building Relationships and Acceptance
In search of the key to friendship … … … … … … … … … … … … … … … … … … … … … … … … … … … … … … … … … … … … … … … … … … … 88
Why Healthy Relationships Fell Apart · We all try to be friends with others to find out who we are · Parents Need Friends on the Autism Spectrum Too · The Key to Friendship is Acceptance · Think About It
08 Amy Gravino Interview: Friendship and Sexuality in Youth on the Autism Spectrum
Puberty, it's a little slow, but eventually you grow up... ... ... ... ... ... ... ... ... ... ... ... ... ... ... ... ... ... ... ... ... ... ... ... ... ... ... ... ... 100
What was more painful than being teased? · A sense of self that no one can take away · Finding someone who understands · The belief that I am lovable, established during adolescence · Even adolescents on the autism spectrum feel sexual curiosity during puberty · New challenges that adolescence will face · Think about it
09 Brian King Interview: The Causes of Communication Breakdowns and the Goals of Parenting
We can connect without eye contact… … … … … … … … … … … … … … … … … … … … … … … … … … … … … … … … 114
A child frozen like a deer in headlights · Autistic behavior simplified to attitude issues · Is communication breakdown to blame? · For the child's life, not the parents' goals · Think about it
10. Interview with Shawna Hinkle: Advocating for Empathy and Educational Rights for People with Autism
Breaking down misunderstandings and prejudices, defending the right to education… … … … … … … … … … … … … … … … … … … … … … … … … … … … … 128
How to get along with friends · Why I react differently to other people's emotions · What educational advocacy parents can provide · What parents of children on the autism spectrum want from schools · Thinking about it
11 Gavin Bollard Interview: Finding a Job and Working Life for People with Autism
If you can do housework, you can have a job… … … … … … … … … … … … … … … … … … … … … … … … … … 140
Work life, immersed in work... ... · Preparing for a career starting from home, and finding the ideal work environment and mentor · Special interests and skills that will make you shine as a professional · Thinking about it
12 Angela Andrews Interview: Different Paths to Growth and Overcoming Limitations
For a child who will overcome limits… … … … … … … … … … … … … … … … … … … … … … … … … … … … … … … … … … … … … … … … 150
Children who take different paths to growth · Don't overprotect your child · The more you dream, the more the future changes · Think about it
Concluding the interview
Life Themes Discovered in the Stories of Twelve Adults on the Autism Spectrum … … … … … … … … … … … 162
Advice from Twelve Adults on the Autism Spectrum
33 Pieces of Advice We Want to Give to People with Autism Who Live Strongly in the World… … … … … … … … … … 172
2 Skills you must learn to live as an independent human being: self-advocacy… … … … … … … … … … … … … 177
Translator's Note
The value of 'diversity' becomes the power to see disability as a possibility rather than an impossibility... ... ... ... ... ... ... ... ... ... ... ... 186
Key Terms and Concepts … … … … … … … … … … … … … … … … … … … … … … … … … … … … … … … … … … … … … … … … … … … … … … … … 188
References … … … … … … … … … … … … … … … … … … … … … … … … … … … … … … … … … … … … … … … … … … … … … … … … … … 190
Going into the interview, “I want to tell our story for children on the autism spectrum and their parents” … … … … 16
01 Interview with Lydia Brown: Autistic Identity and Self-Advocacy
Do you want to 'fix' us? … … … … … … … … … … … … … … … … … … … … … … … … … … … … … … … … … … … … … … … … … … … … … 18
Autism is fundamental to my identity. · Asperger's is the next step in evolution, and severe autism is a malfunction in evolution? · Stop trying to "fix" us. · Teach self-advocacy. · Think about it.
02 Alyssa Hillary Interview: Social Integration and Hiding Autism
It is not hidden, and the more you hide it, the further it gets… … … … … … … … … … … … … … … … … … … … … … … … … … … … … … … … … 28
Their own jokes · Everyone does the same thing · If it were integrated into hiding autism · Think about it
03 Ben Katze Interview: Bullying and Academic Problems in School Life
How to live and study safely at school … … … … … … … … … … … … … … … … … … … … … … … … … … … … … … … … … … … … 38
School life with masks · If there is a classroom where someone is on my side · Please actively communicate with the school · The difference of having a teacher who gives me a sense of closeness · A home environment that supports my child's school life · Think about it
04 Team Page Interview: Social Skills Manual and Executive Function Problem Solving
If you lower your anxiety, it's okay to be a lonely weirdo... … … … … … … … … … … … … … … … … … … … … … … … … … … … … … … … … … … … … 50
Surviving Kickball with Opera · Everyone is an actor on the stage of society; we need a manual like a script · Executive function that 'can't be done' · Meditation that lowers anxiety · Thinking
05 Jodi Van de Wetterling Interview: Motor Planning, Sensory Processing, and Cognitive Behavioral Therapy
How to Find Treatment That Helps Your Child … ...
The trampoline that completely broke me down · Still, exercise from a young age · Sensory processing issues that are more fundamental than social skills · For cognitive behavioral therapy to be effective · Think about it
06 Interview with Cathy Gray: The Ethical Challenges of Autistic Behavior "Correction" and Treatment
Please increase what you can do, not what you can't do... ... ... ... ... ... ... ... ... ... ... ... ... ... ... ... ... ... ... ... 74
What I Learned from the Disneyland Monorail · Passion, Special Interests, and Obsession vs. Linking · Why Do We Insist on Eye Contact? · How to Learn to Act Naturally, Not Robotically · What We Want from Our Parents, Even When We Can't Say It, and Even When We Can · Considerations
07 Interview with Lydia Wayman: Building Relationships and Acceptance
In search of the key to friendship … … … … … … … … … … … … … … … … … … … … … … … … … … … … … … … … … … … … … … … … … … … 88
Why Healthy Relationships Fell Apart · We all try to be friends with others to find out who we are · Parents Need Friends on the Autism Spectrum Too · The Key to Friendship is Acceptance · Think About It
08 Amy Gravino Interview: Friendship and Sexuality in Youth on the Autism Spectrum
Puberty, it's a little slow, but eventually you grow up... ... ... ... ... ... ... ... ... ... ... ... ... ... ... ... ... ... ... ... ... ... ... ... ... ... ... ... ... 100
What was more painful than being teased? · A sense of self that no one can take away · Finding someone who understands · The belief that I am lovable, established during adolescence · Even adolescents on the autism spectrum feel sexual curiosity during puberty · New challenges that adolescence will face · Think about it
09 Brian King Interview: The Causes of Communication Breakdowns and the Goals of Parenting
We can connect without eye contact… … … … … … … … … … … … … … … … … … … … … … … … … … … … … … … … 114
A child frozen like a deer in headlights · Autistic behavior simplified to attitude issues · Is communication breakdown to blame? · For the child's life, not the parents' goals · Think about it
10. Interview with Shawna Hinkle: Advocating for Empathy and Educational Rights for People with Autism
Breaking down misunderstandings and prejudices, defending the right to education… … … … … … … … … … … … … … … … … … … … … … … … … … … … … 128
How to get along with friends · Why I react differently to other people's emotions · What educational advocacy parents can provide · What parents of children on the autism spectrum want from schools · Thinking about it
11 Gavin Bollard Interview: Finding a Job and Working Life for People with Autism
If you can do housework, you can have a job… … … … … … … … … … … … … … … … … … … … … … … … … … 140
Work life, immersed in work... ... · Preparing for a career starting from home, and finding the ideal work environment and mentor · Special interests and skills that will make you shine as a professional · Thinking about it
12 Angela Andrews Interview: Different Paths to Growth and Overcoming Limitations
For a child who will overcome limits… … … … … … … … … … … … … … … … … … … … … … … … … … … … … … … … … … … … … … … … 150
Children who take different paths to growth · Don't overprotect your child · The more you dream, the more the future changes · Think about it
Concluding the interview
Life Themes Discovered in the Stories of Twelve Adults on the Autism Spectrum … … … … … … … … … … … 162
Advice from Twelve Adults on the Autism Spectrum
33 Pieces of Advice We Want to Give to People with Autism Who Live Strongly in the World… … … … … … … … … … 172
2 Skills you must learn to live as an independent human being: self-advocacy… … … … … … … … … … … … … 177
Translator's Note
The value of 'diversity' becomes the power to see disability as a possibility rather than an impossibility... ... ... ... ... ... ... ... ... ... ... ... 186
Key Terms and Concepts … … … … … … … … … … … … … … … … … … … … … … … … … … … … … … … … … … … … … … … … … … … … … … … … 188
References … … … … … … … … … … … … … … … … … … … … … … … … … … … … … … … … … … … … … … … … … … … … … … … … … … 190
GOODS SPECIFICS
- Date of issue: June 18, 2025
- Page count, weight, size: 200 pages | 150*205*14mm
- ISBN13: 9791191827569
- ISBN10: 1191827569
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