Recommendation

Acknowledgements


Chapter 1 Dementia

What is dementia?

dementia patients

What to do if a family member has dementia


Chapter 2: Getting the Medical Help You Need for Dementia Patients

Evaluating patients with suspected dementia

Find someone to evaluate you

Treatment and management of dementia


Chapter 3: Characteristics of Behavioral Symptoms in Dementia Patients

Brain, Behavior, and Personality: Understanding the Behavior of People with Dementia

How to Care for People with Dementia

memory problems

Overreaction or catastrophic reaction

Aggression

Language and communication problems

-When a dementia patient has difficulty expressing his or her intentions
-If the patient has difficulty understanding what others say

loss of coordination

Loss of sense of time

Symptoms with extreme fluctuations


Chapter 4: Problems of Independent Living

mild cognitive impairment

Caring for patients with early dementia

When a patient must quit his job

When the patient becomes unable to manage money well

When the patient should stop driving

When the patient must give up independent living

-When a person living alone is suspected of having dementia

-What guardians can do

-Moving to a new residence


Chapter 5 Problems that may arise in everyday care

Risk factors to watch out for

- Risk factors in the home

- Risk factors outside the home

- Risk factors inside the car

-Hazards on highways and parking lots

-Risk factors of smoking

- Risk factors of hunting

Nutrition and Meal Times

-Meal preparation

-mealtime

-Behavioral problems while eating

-Malnutrition

-Weight loss

-choke

-When to start cervical nutrition

work out

Recreational activities

-Meaningful activities

Personal hygiene

-bath

-Where to purchase supplies needed by patients

-Get dressed

-Getting dressed up

-Oral hygiene

incontinence

-Urinary incontinence

-Fecal incontinence

-Aftercare after incontinence

Gait, balance, and falling problems

-When the patient is confined to a wheelchair or bed

-bathchair

Changes you can make at home

- Tools to make life easier for the elderly

-Cluttered vs. empty living environment


Chapter 6 Medical Problems

pain

Injuries after a fall

bedsore

dehydration

pneumonia

Influenza and COVID-19

constipation

drugs

Oral problems

vision problems

hearing problems

dizziness

Go to the hospital

When a patient needs to be admitted to the hospital

When causing a seizure, convulsion or match

Muscle tremors (myoclonus)

Death of a dementia patient

-Cause of death

- Home death

-Hospice and palliative care

-If you die in a hospital or nursing home

-When to end treatment

- Treatment needed for patients nearing death


Chapter 7: Managing Behavioral and Neuropsychiatric Symptoms of Dementia

Six Ways to Manage Behavioral Symptoms (6Rs)

-6Rs of Behavioral Symptom Management

Behaviors to hide memory loss

prowl

-Why the patient wanders

-Managing wandering symptoms

-Sleep disturbances and nocturnal wandering behavior

Sundown syndrome, in which symptoms worsen in the evening

The act of losing, hoarding, and hiding things

Rummaging through closets and drawers

Inappropriate sexual behavior

The act of repeating the same question

repetitive behavior

Distraction

Obsessive or persistent following behavior ('shadowing')

Behavior that involves complaining and swearing

stealing things

The act of forgetting that a call has come in

Actions that are constantly demanding

stubborn and uncooperative behavior

Dementia patient's insulting behavior toward caregiver

Managing behavior with medication


Chapter 8: Mood Changes and Suspicion-Related Symptoms

melancholia

Complaining about your health

suicide

alcohol and drug abuse

Indifference and apathy

Remembering emotions

anger and irritability

Anxiety, nervousness, restlessness

False beliefs, suspicions, paranoia, and hallucinations

-misconception

- Inability to recognize people or objects (agnosia)

-“My mom will come pick me up.”

-doubt

-The act of hiding an object

-Delusions and hallucinations

Free


Chapter 9 Special Measures for When a Guardian Is Ill

How to ask for help

If the guardian dies


Chapter 10: Getting Outside Help

Get help from friends and neighbors

Find information and services

Types of care services

-Home care services

-Home care

-Day care center

-Short-term care services

Preparing for home care, day care, and short-term care services

When a patient refuses care services

Caregivers' feelings about using short-term care services

Find information

Paying for care services

Is it okay to have patients with different medical conditions mixed in a short-term care program?

Understanding the quality of service

Research and Pilot Programs


Chapter 11: Dementia Patients and Their Families

Role change

Understanding Family Conflict

-Sharing responsibility

Guardian's Married Life

Coping with Role Changes and Family Conflict

-Family meeting

If you live far away from the person with dementia

How can I help when I am not the primary caregiver?

Care work and the profession of caregivers

Children of the guardian

teenage children


Chapter 12: The Emotional Impact of Caring for a Person with Dementia on Family Members

emotional response

-anger

- embarrassment

-Feeling of helplessness

- Guilt

-Laughter, love, and joy

-Condolences

-Depression

-Isolation and loneliness

-worry

-On the border between hope and reality

Abuse of dementia patients

physical reactions

-fatigue

-disease

Sex life

-If your spouse has dementia

-If you live with a parent with dementia

future

-A spouse who is single

Death of the patient


Chapter 13 Self-Care for Caregivers

Take a break from caring

-Give yourself a gift

-friend

-Avoiding isolation

Find the help you need

- Recognize warning signs

-Get advice

Connecting with other families: Dementia Care Centers and similar organizations

-Self-help group

-Excuse

Advocacy for people with dementia


Chapter 14 Financial and Legal Issues

Assessing the financial status of the guardian

-Possible future costs

-Future assets

Finding Assets for Dementia Patients

-Bank account

-Stock certificates, bonds, certificates of deposit, savings bonds, mutual funds

-Insurance certificate (life insurance, accident insurance, health insurance)

-Bank safety deposit box

- Real estate (houses, land, businesses, jointly owned or partially owned rental properties)

- Severance pay and disability benefits

-Transferable items such as collectibles, gold, jewelry, cash, jewellery, cars, antiques, art, boats, camera equipment, and furniture.

-Will

-Trust account

-Personal loans

-Overseas bank account

-legacy
- Proof of purchase of land

legal issues


Chapter 15: Preparing for Long-Term Care

Types of residential facilities

Entering a facility with a person with dementia

nursing home

Find a long-term care facility

-Pay facility fees

Things to Consider When Choosing a Long-Term Care Facility

- Convenience of visiting the facility

-expense

-Cleanliness and safety

-employee

-Care and Services

-Physical environment

-End-of-life care policy

-meal

-right

Entering a residential living facility

Adapting to a new life

-Visit

-Adaptation of guardians

When problems arise in nursing homes or other residential facilities

Sexual problems occurring in nursing homes or other residential facilities


Chapter 16: How to Prevent and Slow Cognitive Decline

Common changes due to aging

- Word recall and psychomotor speed

Dementia risk factors

-Cardiovascular disease

-work out

- Social and intellectual activities

-Eating habits

-education

-diabetes

-melancholia

-toxin

-Head injury

-age

-oil field

drugs

summation


Chapter 17: Causes of Brain Disease and Dementia

mild cognitive impairment

dementia

-Alcoholic dementia

-Alzheimer's disease

-Amnesia (Korsakoff) syndrome

-Cerebral Amyloid Angiopathy

-Chronic traumatic encephalopathy

-Corticobasal degeneration

-melancholia

Frontotemporal dementia

-AIDS-related dementia

-Huntington's disease

-Lewy body dementia

-Parkinson's disease-related dementia

-Primary progressive aphasia

- Progressive supranuclear palsy

-Traumatic brain injury (head trauma)

-vascular dementia

- Early-onset dementia that occurs at a young age

Other brain diseases

-Delirium

-Stroke and focal brain damage

-Transient ischemic attack


Chapter 18: Dementia Research

Understanding the Research

Vascular Dementia and Stroke Research

Alzheimer's disease research

-Structural changes in the brain

-Brain cells

-Neuroplasticity

-neurotransmitters

-electrical signal

-Abnormal protein

-Abnormal proteins present in brain cells

-nerve growth factor

-infection

-Prion

-Brain cell (or stem cell) transplant

-metal

-Immune system defects

-Head injury

-Drug research

epidemiological studies

Down syndrome

aging

Genetics and Dementia

gender

Neuropsychological testing

brain imaging

Maintain physical and mental activity

The impact of acute illness on dementia

Research on the provision of care services

Dementia prevention factors

Is dementia one disease or many?

To all those who spend 36 hours a day caring for dementia patients

"Our Family's Day is 36 Hours" is a book that has been speaking to countless families caring for dementia patients about the "strength to endure together" for approximately 40 years since its first publication.
At the time, dementia was often neglected under the mistaken perception that it was 'senility,' and the difficulties patients and their families faced were rarely discussed publicly.
Published in such an era and revised repeatedly to reflect the latest medical advances, this book combines medical knowledge and everyday caregiving experiences to tell a concrete and warm story about the realities faced by dementia patients and their caregivers.
The 'Bible of Dementia', which comforts the caregivers of dementia patients who live as if each day is 36 hours long, as if it knows all about the hardships and patience of caregiving, has finally been translated into Korean and officially published in Korea.

The reason this book was so loved is because it went beyond a simple medical guideline and served as a 'companion in care'.
The book meticulously covers the changes that occur as the disease progresses, the patient's behavior and psychology, and even the conflicts and emotions that caregivers face.
Each chapter contains specific examples, so if you read them and relate them to your own situation, you will find practical help.
Since its first edition, it has been revised several times over the past 40 years to reflect the latest research findings and clinical experience. The 7th English revised edition, translated for the first time in Korea, includes the latest information on drug treatment, behavioral symptom management, and utilization of external support systems.
But there is one thing that doesn't change.
This is the philosophy that patients should be treated as individuals who deserve respect.

This book is also a record of the history of dementia care.
In fact, in the United States, it is said that social perceptions surrounding dementia have changed significantly since the publication of this book.
More people are coming to understand dementia as a disease, and systems and services to support patients and their families are expanding.
In the midst of these changes, this book has consistently reached out to guardians over the years.
On the seemingly endless road of caregiving, this book continues to inspire confidence in countless people that they are not alone.
That's why this book is still relevant 40 years later.

Cases and Solutions Encountered at the Crossroads of Care

This book is a guide that simultaneously delivers deep empathy and practical (medical) help to families of dementia patients.
The confusion, fear, and loneliness that families facing dementia experience are difficult to express in words.
So, this book comforts the hearts of patients and their guardians through various cases experienced by them, and gives them a sense of relief that 'I'm not the only one'.
The author, a researcher studying dementia, personally collected these personal experiences, which help us realize that we do not have to bear the burden of care alone.
This allows us to take a more detailed look at the difficulties, both large and small, that arise during the caregiving process.

This book provides step-by-step, customized guidance for caregivers in various situations they face, from the time of dementia diagnosis to the patient's final stages.
Each chapter covers a wide range of topics, including behavioral changes in dementia patients, management of physical and mental symptoms, support for daily living, and emotional burden.
In particular, it details the practical problems of care through real-life examples and provides specific methods and advice for solving them.
Through this book, caregivers can prepare for unexpected situations and gain the wisdom needed to maximize the quality of life for both their patients and themselves.

Care that doesn't walk alone

The emotional burden experienced by caregivers in caring for dementia patients is not light.
A complex mix of emotions—anger, guilt, isolation, and even helplessness—can sometimes make taking care of yourself feel difficult and even a luxury.
At that time, this book encourages us to face the above emotions without hiding them.
And ultimately, it emphasizes that when caregivers take care of their own health and mind, it also has a positive impact on the patient.
Self-care is never selfish.
Taking care of yourself by actively utilizing support systems such as counseling and self-help groups makes you love your caregiver more and enables sustainable care.

In addition, this book consistently shows the perspective of treating dementia patients as individuals who deserve respect.
While social prejudice and misunderstanding about dementia still exist, protecting the dignity of patients is the most fundamental foundation of care.
By understanding the patient as an individual and respecting their feelings and wishes as much as possible, the trust and bond between the guardian and the patient becomes stronger.
This respect also goes a long way in relieving the emotional burden experienced by caregivers.

Finally, we provide specific guidance to help caregivers and patients actively utilize external help and social support.
It provides detailed explanations of the types and methods of utilizing various care support systems, including home care services, day care centers, and short-term care services, and focuses on alleviating practical difficulties that may be encountered during the caregiving process.
Rather than having caregivers shoulder the burden alone, we clearly convey the fact that when they walk the path of care together with the support of the community, government, and related organizations, both patients and their families can lead healthier and more stable lives.