It has been less than 30 years since ‘disabled women’ began to appear in our society.
During this time, a fierce movement for the rights of people with disabilities has been waged, and interest in disability has certainly increased compared to before.
Yet, disability remains unfamiliar, and most people find it difficult to relate to people with disabilities.
Disabled people still protest on the subway and face hateful slurs, and disabled women are still trapped in a vicious cycle of multiple discrimination.
The world seems to have forgotten, or rather wants to forget, that we are alive and breathing, despite the fact that women make up over 40% of all people with disabilities.
Women with disabilities are still considered non-existent, or are treated as if they do not exist even though they are known to be so.


This book tells the story of the “messy, confusing, and undeniable” lives of women living with disabilities.
We do not have a single voice, nor can we be described by a single identity as disabled women.
Moreover, it is a complex entity that cannot be explained by adding disability discrimination and gender discrimination.
Each area of ​​various oppressive mechanisms, such as disability and gender, as well as age, class, sexual orientation, and religion, are intertwined, connected, and intertwined with other areas, interacting and constituting each other.
This book makes our existence visible by talking about the multiple discriminations that disabled women experience.

“I like the word ‘family’ more than ‘members’.
Family is 'people who live together in the same house and eat together.' I have many people who are not living with me but are considered family.
We gather like a family during holidays, celebrate each other's birthdays, and share moments of joy and sorrow together.
The bond of disability between us is stronger than blood ties.
Most of my family members, including myself, are de-familialized.
The reasons are different for each person, but I have no regrets or regrets about choosing insulation.
“Because it was a way to protect myself.”
--- p.9

“People with disabilities are important people in our society.
It is a deep, great, and shining being that makes us reflect on our lives so that we can rewrite universal standards.
It is not a voice that should be marginalized, but a voice that forces us to redesign the center.
Not just someone who has 'persevered', but someone who moves forward and opens a new path.
Women with disabilities have existed in a double silence.
Within the social gender role of 'woman' and the boundaries of separation as 'disabled people', the voices of disabled women are easily erased.
Our voices were often spoken by more powerful speakers.
But now the question must change.
We need to re-ask the question from “Who are women with disabilities?” to “What are women with disabilities saying?”
--- p.25

“If I have three months left to live, I should go back home first and spend the first month organizing my surroundings.
There's nothing special about cleaning up the surroundings.
If you have any unpublished manuscripts from your past writings, it would be a good idea to organize them.
I don't know if anyone will be interested in my writing after I'm dead.
I want to throw away all the useless stuff that fills up my house and leave.
Because of the nature of our disability, it is not easy for my husband and I to give up.
I'm not saying this is the case for all people with disabilities, but my husband and I don't like being touched by others.
So I piled up blankets I hadn't used in years in the closet, and instead of throwing away my son's basketball, hula hoop, and other odds and ends, I just shoved them in a corner of the living room."
--- p.38

“On stage, the bodies and speech of disabled actors are not evaluated functionally or categorized by the severity of their disabilities.
Rather, it creates a moment in which the subject of the gaze is overturned or intersected.
Right at that boundary, we explore new possibilities in disability theater and perform plays together with fellow actors.
For several years now, I have been observing and recording my body with my group members based on my own body.
This is a work that records the different shapes of the body as they are, without symmetry or balance as the standard.
Describe the shape and condition of your body in objective language.
After completing the recording process, we share the contents of each other's records.
“My body, which I think and feel, and the body that others see and feel are talked about together.”
--- p.51

“I am so tired of people judging by appearances.
I have a small stature due to a rare disease that involves dwarfism.
However, there are people who treat people as dependent or look down on their age just because they look younger than their age.
I also sometimes react sharply to rude people.
Just because people with disabilities have difficulty navigating a shopping mall, should they only wear clothes selected by their caregivers? This is truly the digital age.
Online shopping allows you to choose and buy the style you want.
Recently, the number of fashion malls for the disabled, such as Heartist, has been increasing.
People with disabilities can also purchase clothes that are comfortable, practical, and yet reflect their individuality.
We each have the right to choose and wear clothes that suit our tastes.”

--- p.59